Culturally Informed Family Group Therapy for ‘Schizophrenia’

Incorporating cultural values and family members into group therapy for people diagnosed with ‘schizophrenia’ may prove beneficial.

Ashley Bobak, MS
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An exploration of a culturally informed group therapy for individuals diagnosed with schizophrenia and their family members suggests it can help reduce the symptoms associated with psychosis. The results also indicate that participants and their family members were highly satisfied with their experiences in the group.

While the results, aside from symptom reduction, were not statistically significant, these findings suggest that it may be a beneficial approach to treating ‘schizophrenia’ that is inclusive of those from varying racial and ethnic backgrounds, and that further investigation is warranted. The researchers, led by Jessica Maura from the University of Miami, write:

“Although traditional group-based interventions for schizophrenia, such as cognitive-behavioral therapy, psychoeducational therapy, and multi-family group therapy, have demonstrated promise, these interventions subscribe to Western-based models of mental illness and therefore do not consider cultural factors which may impact service delivery and outcomes.”

Schizophrenia is a contested diagnosis that refers to a collection of symptoms associated with psychosis that can significantly impact an individual socially, psychologically, and occupationally. The impact of these symptoms can take a toll on family members as well, pointing to the need for an intervention that incorporates both the affected individual as well as their family.

In order to address the gaps left behind by traditional group treatments regarding cultural competence, the researchers in the current study developed a culturally informed group therapy for schizophrenia (CIGT-S), which was adapted from a more individualized, single-family oriented approach.

CIGT-S allows for individuals with schizophrenia and/or their family members of racially and ethnically diverse backgrounds to share their experiences with one another. CIGT-S was designed with a flexibility that enables it to be tailored to the particular values, beliefs, and practices of the individual and/or their family.

Others have pointed to the need for increased cultural competence in mental health, highlighting how integrating culture into mental health could reduce inequalities for racially and ethnically marginalized individuals.

During group discussions, group facilitators asked participants to explore their cultural beliefs and values in relation to their experiences of/their family member’s experience of schizophrenia. As groups were culturally diverse, there were opportunities to hear from varying perspectives regarding how domains like family involvement and religion/spirituality affected the ways in which the participants coped with schizophrenia.

The researchers note:

“These broad topics appear to be relevant across racial/ethnic groups as the literature suggests that collectivistic orientations and spiritual/religious coping may be linked to better mental health among both minority and nonminority patients and family members.”

They also highlight that including such broad topics allows for flexibility and generalizability across culturally diverse groups.

Additionally, incorporating religious/spiritual beliefs into treatment has been shown to have benefits for both those diagnosed with schizophrenia and their caregivers, such as reducing symptoms, decreasing depression and anxiety for individuals with schizophrenia, and increasing well-being and quality of life for those caring for individuals with schizophrenia.

Further, collectivistic ideals, wherein the family is prioritized over the self, have also been shown to improve mental health outcomes for individuals with schizophrenia and their families – both by reducing psychiatric symptoms and stress and by improving psychological health.

CIGT-S is a manualized approach to treatment that addresses five domains over the course of 15 weeks in 90-minute group sessions. One of the treatment modules, family collectivism, aims to assist group members with working together as a cohesive team, through exploring areas such as their role in their families. Another module, psychoeducation, provides group members with information on the symptoms, potential causes, treatments, and environmental impacts on schizophrenia. The spiritual coping domain strives to cultivate spiritual/religious beliefs that may help the individual and their families in coping with their diagnosis of schizophrenia. The communication training module aims to teach effective communication skills. Lastly, the problem-solving module works to assist individuals and their families by improving their problem-solving skills.

For their study, researchers explored what effect, if any, CIGT-S had on symptom severity of individuals diagnosed with schizophrenia, and on anxiety, depression, and stress experienced by their family members.

The researchers recruited 150 participants, 106 being individuals with schizophrenia, and 44 being family members of individuals with schizophrenia. The majority of participants with schizophrenia were middle-aged, African-American (51.3%) men (75.2%), which is reflective of research elsewhere that points to racial bias as being the culprit in the over-diagnosis of schizophrenia in Black individuals, who tend to be over-represented in this diagnostic category.

In contrast, family member participants were mostly middle-aged, Hispanic (38%) women (54%), with the majority being mothers (32%) of individuals with schizophrenia.

Participants were either selected for the group, or placed on a waitlist group, wherein no treatment was provided. Waitlisted participants were ultimately permitted to join the group after their 15-week waitlist period and after completing a waitlist termination assessment. Participants in the group were provided with a series of measures, offered both in English and Spanish, which assessed areas such as diagnosis, symptom severity, depression, anxiety, and stress, and overall satisfaction with treatment.

The results of the study suggest that individuals with schizophrenia experienced a decrease in symptom severity following completion of the CIGT-S program. Additionally, although this finding was not statistically significant, researchers found that those who had participated in the program had lower levels of symptom severity than those who had been waitlisted.

While there were no significant findings related to a decrease in family member depression, anxiety, or stress, the researchers point out that all family members included in the study were experiencing mild-to-normal depression, anxiety, and stress.

The researchers reported that participants were “highly satisfied” with the treatment program. They describe how the group appeared to provide a safe, open space where group members could both learn and discuss any concerns or issues.

Individuals diagnosed with schizophrenia noted an appreciation for being able to express themselves and meet others with shared experiences, in addition to learning more about their family members’ perspectives. Family members reported that they found value in the content of the groups and gained insight into their loved ones’ experiences.

Both emphasized how discussing the family dynamic and exploring ways to support the family was helpful, and also offered suggestions for additional domains to include in future group sessions, such as stigma and finding resources.

Although promising, there were a number of limitations of this study that point to the need for further exploration and research. The sample size was small, and there were high levels of participant drop-out (65% for individuals with schizophrenia, 58% for family members). While participant drop-out appeared to be consistent with trends in psychotherapy research for diverse individuals with schizophrenia, these drop-out rates indicate that more work needs to be done to better improve retention.

Researchers highlight potential steps to be taken to improve retention in future studies, such as including discussions of cultural differences and including culturally specific phrases and metaphors. They also recommend further exploration into how cultural beliefs, stigma, and discrimination impact perceptions of mental health issues and treatment. Moreover, they highlight how the spiritual domain of treatment shows promise in being a particularly engaging module, and suggest that perhaps offering this module earlier on in treatment may prevent participants from dropping out.

Overall, although the research results were modest, this study highlights the importance of culturally informed treatment and treatment that extends beyond the individual and includes important figures in the individual’s life. Such treatment is critical, and others have called for similar, psychosocial approaches that do not rely on dangerous antipsychotic medications as the primary form of treatment. This research opens up a pathway for further exploration of such a psychosocial approach, one that illuminates how we can treat schizophrenia in a way that allows for inclusivity, support, and understanding.

 

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Maura, J., & Weisman de Mamani, A. (2018). The feasibility of a culturally informed group therapy for patients with schizophrenia and their family members. Psychotherapy, 55(1), 27-38. (Link)

6 COMMENTS

  1. hopefully anyone “running” a group is not actually running it. The biggest problem is the “training” of “leaders” of “groups”. Already they enter a room with a power inequality by someone being the one with the sickness and the family will be also seen as a problem.
    Guaranteed, the trained one is not the one with “the problem”. How sad is it to pretend not to have an abnormality and that is what we are all pushed to present.

    I thought of the different color of chairs in that room. Must be something modern or perhaps a psychological experiment, where the “professional” keeps notes on who returns to same color of chair and puts “meaning” on that. Perhaps framing it in words such as “patient seems to be rigid and does not like change”
    Which of course could lead to a valid “diagnosis”

    And of course one could always start asking subjects of why they chose a certain color chair, why they like that color and “how does that color make you feel”.

    No pressure mind you, to answer it, but if you don’t, watch out, some meaning is in there.
    They never did say WHY people dropped out, because the people are not doing the reporting now are they. REporting will be done by those who were not involved/receiving in “treatment”

  2. The entire concept of “schizophrenia” is an unproven “Western-based model of mental illness.” And we’ve already found the medical proof that the “schizophrenia” treatments, the antipsychotics/neuroleptics, create both the negative and positive symptoms of “schizophrenia,” via neuroleptic induced deficit syndrome and anticholinergic toxidrome.

    “incorporating religious/spiritual beliefs into treatment has been shown to have benefits,” I have proof in my medical records that the child abuse covering up ELCA Lutheran “mental health” workers believe that belief in the Holy Spirit is a “Holy Spirit voice,” proving a person is “psychotic.” Despite the fact I was merely questioning the meaning of a dream, not a “voice.”

    The “mental health” theorists are always calling for “the need for further exploration and research,” despite the fact there is no need for such. Since both “schizophrenia” and “bipolar” are iatrogenic illnesses created with the “gold standard treatments.”

    “This research opens up a pathway for further exploration of such a psychosocial approach, one that illuminates how we can treat schizophrenia in a way that allows for inclusivity, support, and understanding.”

    I’m quite certain the point of defaming someone with any of the “invalid” DSM disorders is to decrease “inclusivity, support, and understanding.” For Gods sake, my idiot psychologist told me to “quit all your activities and concentrate on the meds.” Such insanely bad advice, if taken, would have resulted in separating me from other people and preventing others from understanding and supporting me.

    I hope the “mental health” workers will some day garner insight into the fact your DSM disorders were all confessed to be “invalid” by the head of your industry seven years ago.

  3. A cognitive problem should be cured through knowledge.
    I think is very helpful for those considered mentally ill to read, to document themselves from online sources. And not only for mentally ones, but for any kind of physically ill patients.
    Why are doctors not teaching people to read about diseases and treatments? Why they behave like priests or esoterics?

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