Community

Treatment by lay health workers is more effective than standard facility-based care at reducing disability and psychotic symptoms in people with schizophrenia diagnoses, according...

When Linda Sarage and Jake Powers first approached me about writing a section for the fantastic manual developed by the addictions community — From the Ground Up: How to Build Your own Peer-to-Peer Recovery Center — that would help connect this manual to the mental health community, I envisioned writing a section that would serve as some sort of translation tool that could connect two very different communities toward a common purpose.  After reading the manual, however, I quickly remembered how much the mental health community has in common with the substance abuse community and how little “translation” is actually needed.

There's a growing (and soon to be quickly growing) group of us who are not therapists or psychiatrists but who offer “coaching,” connection and support. We offer this support to those coming off psychiatric drugs, or who would like to, or are opting to not go on in the first place but are facing pressure to. Most of us are psychiatric survivors so a lot of our knowledge and information is from firsthand experience. Others may have never been on psychiatric drugs but know a lot about the ins and outs of withdrawal through close association with those who have.

I am being asked by a number of grassroots communities to facilitate a dialogue about how they can better welcome and support individuals who experience emotional distress. This is a challenge for many aspiring peers and allies in a culture where responsibility for our individual well-being has been increasingly transferred to psychiatrists, doctors, and other health professionals.

As noted in Anatomy of an Epidemic, the prognosis for someone experiencing psychosis is far better in developing countries than in industrialized countries. Robert Whitaker and others posit that this is due to the treatment models used in the developing world, as well as to debility and chronicity caused by psychiatric drugs themselves. I think it's also important to explore traditional tribal and village based models of helping people experiencing psychosis and examine why they may be effective. Do these traditional societies know something we don't?

People who saw an advertisement for Cymbalta were less likely to offer help, endorse recovery, and have positive attitudes regarding self-determination towards people identified with...

Brattleboro, Vermont psychiatrist Nels Kloster and mental health counselor Robert Stack discuss the coming year in mental health, and the changing perceptions regarding mental...

For decades, one of the most prominent voices for radical change, or “non-violent revolution” in mental health care has been David Oaks, former director of MindFreedom International. Many activists today were drawn into their work due to David’s influence. Robert Whitaker, for example has credited an interview he did with David in 1998 for propelling him into noticing and writing about the way psychiatric drugs were harming more than helping. My own journey in becoming outspoken on these issues has also been massively influenced by David’s activism and ideas, which is one reason I care strongly about the issue I am bringing up here. While David has been helpful, directly or indirectly, to so many of us, he now needs our help.

eCPR is a public health education program designed to teach people to assist others through emotional crisis through three steps: C = connecting, P = emPowering, and R = revitalizing. eCPR recognizes that the experiences of trauma, emotional crisis, and emotional distress are universal; they can happen to anyone, at anytime, anywhere.

Kingsley Hall was the first of Laing’s household communities that served as a place where you could live through madness until you could get it together and live independently. It was conceived as an “asylum” from forms of treatment — psychiatric or otherwise — that many were convinced were not helpful, and even contributed to their difficulties. By the time I arrived in London in 1973 to study with Laing there were four or five such places. Getting in wasn’t easy.

When I pick up a pen, I put down my fear. Sorry, they don't both fit into my hand at once. Meditation teachers often say the hardest part is getting to the cushion. The hardest part of writing is probably picking up the pen. So, pick up a pen, I dare you. Write even if you think no one will read it, even if you don't want anyone to read it.

I understand that some people are staunchly opposed to public mental health services, and I understand why. However, millions of people reach out to these organizations and agencies for assistance in getting through difficult times. It is common knowledge that the “help” they get is not always helpful, but I have known a few people who found the support they were looking for and, let’s face it, until there are widely available and accessible alternatives that people are able to turn to, many people who are struggling reach out to public and private providers for help. Some people call me naïve because I have faith in the human capacity to make good choices, when given the opportunity and presented with evidence that supports a decision that is informed not only by data, but by recognition of their potential to be a force of healing and justice in the world.

In my last blog, I talked about how I was attempting to cope with a “mini-relapse” without using psychiatric drugs. One Sunday morning in the midst of this episode I awoke in a particularly dismal state. I didn’t have a structure planned for the day. And without something to look forward to, both my anxiety and depression increased.

The September/October issue of the Harvard Review of Psychiatry reviews the biological and therapeutic research findings for the role of oxytocin in attachment, and...

It has been twenty years since my last suicide attempt. I was barely eighteen years old, and had already spent the last four years, my entire adolescence, really, in and out of the mental health system. On that day, twenty years ago, I left the hospital with nothing but a prescription for yet another drug in my hand, sent back to the decrepit group home where I began my adult life.

The recent incident in the grounds of Washington Capitol, involving a young educated woman, brought shock to many people. It was another opportunity to blame a victim of mental illness and demand further restraint and medical attention for such individuals. Yes, we are lacking dignified, caring, discerning and attentive treatment for those whose spirits are broken. But we certainly don’t suffer from a lack of medical treatment for such individuals. It is time for policy-holders, and our scientific community to ask the 'heretical' question; “Could the drugs be the culprit behind the violence?”

I think it is time to reclaim the word disability. Disability needs to be appreciated. To the extent we value community over isolation, anything anyone cannot do, or needs help with, builds community. There are infinite examples in every career and walk of life of how necessary “disability” (since we're calling it that) is for connection, service and meaning in life. Without it we'd have absolutely no need for each other. And the fastest way to despair is to feel unnecessary.

The Redhall Walled Garden provides a tiny glimpse into the future, as a potential alternative to psychiatric hospitals, halfway houses, and the other oppressive forms of treatment that comprises the current status quo in most countries around the world. We can all learn from this alternative approach, and we should popularize aspects of this program just as we do the Soteria House and the Open Dialogue model.

Do you think youth prevention programs, sports, arts programs, or spiritual approaches can help people through emotional distress? We've been calling for this dialogue for years and now it's time to get out in your city and participate in it. In four days in Kansas City we'll have the first ever large scale public forum that includes information about medical harm and the full range of entrepreneurial solutions.

As we approach world hearing voices day 2013 Karen and I are in Canada. We have just enjoyed running a preconference workshop for about 100 people in Winnipeg. I am sitting in my room before breakfast writing this piece and as I sit I am thinking back twenty-three years ago; I am in a psych unit in Manchester and I have a new support worker called Lindsay. By then I had been a psych patient for almost ten years and was fast approaching spending the rest of my life in the system. My support worker had convinced me to go to a new group that was starting in Manchester called a hearing voices group.

When I teach workshops or lead discussions on coming off psychiatric drugs and alternatives, there are invariably parents present who are at loose ends. They want to know what to do for their children, how to help them best, and how it can be possible for their child to live without medication given all they have been through.

I have facilitated support groups and worked one-on-one with those who hear voices for nearly 10 years.. The insights I've come to from my own experience have often facilitated understanding for others. Here is what I have learned from my experience of hearing voices.

An anti-anti-stigma campaign The whole anti-stigma campaign is something of a joke. Google the word “stigma,” see for yourself. Mental health labels are inherently stigmatizing,...

I envision a world where there is no need for a mental health field/system because communities are strong and we have a holistic understanding...

MintPress reports that over half of America's foster children are on some form of psychiatric medication, and tells the story of some for whom...