Personal Stories

If I had any legal rights, I knew nothing about them. And the hospital cared even less about them. As a law student, I would like to share the legal rights I did have in the state of California and how they were violated from the very start.

I kept thinking, why was I the one to be labeled when my husband was doing all this unhealthy, violent stuff? I sought out doctors through health food stores and communities that didn’t believe in medications for a social and family problem. That way no controlling, pill-pushing medical doctor had authority over me.

For psychiatric ‘help’ to happen by force is a paradox and makes absolutely no sense. It can destroy people's personality and self-confidence. It can lead, in the long run, to physical and psychological disability. My dear daughter Luise got caught in this ‘helping system’ by mistake, but she didn't make it out alive. I'm sad to say I later discovered that the way Luise was treated was more the rule than the exception.

If I had a clinical problem, why was something as ancient and simple as meditation helping me? And if normal positive human habits could be so profoundly useful, why the heck was the field marketing pills and “clinical” coping mechanisms to me instead? This frustration helped me jump ship from the medical mindset and hop into the world of humanity.

How did I get here? What turned me from loyal acolyte into fearsome-clawed rebel, itching to take on the high priests of psychiatry? Well, there is nothing like being given a taste of psychiatry’s vile medicine for igniting the revolutionary furnace and getting it glowing white hot.

Around me in the room I could see the different faces lit up by the big whiteboard raised above us. “There are these symptoms...” The psychiatrist would talk for long periods of time, while the nurses would sit quiet, nodding. I became skeptical and thought: “You are trying to talk me into something.”

I was so anxious about having to raise three boys alone that I felt I was going insane. So I thought of going to see a psychiatrist. I was looking for Carl Jung. Instead I found a system where they give you pills, whether you need them or not.

There were days that I’d wake up and all I could do was cry for no particular reason, just another miserable day of withdrawal. However, the idea of taking photos would get me out of the house. Especially on those days, the absolutely only thing that would get me to move at all was the idea of taking photos. One particular day, I was just crying, crying, crying, and as soon as I got to a beautiful spot that I loved, I stopped crying, took photos, and felt at peace. I even found that the days I felt the worst were the days I took the best photos.

I see it everywhere: People with mental illness need medication.  It sounds reasonable. Today, there are even political organizations that seek to make it easy to force a person to take it.

Editor's Note: To ensure the security of her job, the author has opted to use only her first name. My relationship with the mental health...

We first came under pressure to give our developmentally disabled and autistic daughter a psychiatric drug when she was in her mid-teens. She was attending a local school for autistic children but was unable to adapt to their program, and we were urged to consult a psychiatrist. What enabled us to resist the pressure to put our daughter on drugs?

Popular illness narratives tend to be of the restitution sort: I was living my life, I became sick, I got well and picked up where I left off. However, this idea that ill health is a journey to wellness doesn’t help someone with a chronic illness or disability to tell her own story, which may not have a (conventional) happy ending. The notion of ‘recovery’ can be damaging when a return to health may not be possible.

The world calls what was "wrong" with me "bipolar." I prefer the notion that I went through a birth process to become the healer that I am today. I can't be silent because I know there are people like I was who are trapped and may not realize it yet. When they begin to see the prison bars that surround them, I want to be there for them as others were for me.

Six months ago, I was just starting in a position called "Treatment Team Coordinator" at a secure residential treatment facility. In my home state,...

And so I embarked on the darkest journey of my life, one for which neither I nor my husband were prepared. I soon found out that there was no one who could help us. The psychiatrists, even the more sympathetic ones, were not making sense to me. I was coming from the business world and I was not used to accepting superficial answers. They could not tell me what was wrong with Helia and why this had happened to her. They could not answer my challenging questions about the scientific research in the field.

In contemporary U.S. culture, people who intentionally hurt their bodies are called “insane.” We may starve ourselves or carve ourselves, taking to the extreme culturally-embedded norms like thinness in an effort to fight against marginalization or cope with internalized shame. But instead of obtaining the voice or place in society we yearn for, we are further ostracized.

I have lost interest in making sense. Insofar as anti-stigma entails a reassertion of my apparently forgotten humanity via the retelling of some personal narrative in which I generalize my unique experiences toward some universal wisdom, I have lost interest in the reduction of stigma. I would much prefer it if you didn’t need me to be comprehensible.

To this day I do not know how I found my way back. I think it might’ve had something to do with willpower, as I was NOT going to lose myself. I was NOT going to end up like those people who were living indefinitely in the hospital—those “chronic schizophrenics”, as they say. I was going to find my way back, back to myself.

In 20 years of inpatient hospitalization, the psychiatrists that I encountered focused almost exclusively on treating my diseased mind and had no concept or interest in the body. While the wheels of “progress” turn slowly in mental health, I hope that along with ongoing advocacy there will be a focus on responsible health counseling and supporting people in healthier eating and living.

Dating someone when you have a history of “schizophrenia” is very hard. I figured that if people left me for something as common as depression, anyone hearing my story of psychosis would give me an immediate boot. My initial efforts were awkward and lacked discretion — into each date I’d burst, willing to commit for an eternity with unconditional love.

Sometimes it's the simple things that keep us going, especially when the complicated ones seem so overwhelming; when there's too much chaos, too many emotions, too many possibilities and impending disasters. No one can give you a reason to live. You have to find it for yourself. Until you do, try simple things. For me, it was a turtle.

It took coming off psychotropic drugs completely for me to become awake. I had the doctor I was seeing wean me off, though she didn’t want to (instead she suggested I take different drugs.) But here I am almost two years later and I am feeling all of my emotions and managing them well. I knew best what I needed, and I trusted myself. Life has shown me that I can endure many trials and tribulations without giving up, and I trust myself today to reach out for help if I need it.

Yoga helped me explore and reconnect with the body I’d abandoned and abused for years. My pain and sadness had me living exclusively in my mind, my body nothing more than a battleground for my inner wars. Through yoga and meditation, I slowly began to love myself again, learning to treat myself with care and respect. I felt a greater sense of self-awareness, and a sense of connection to something greater. This was a drastic contrast to the days when I felt as if god had forgotten about me, or like I was a mistake not meant for this world.

The medication left me emotionally numb, making it impossible to connect with people or sense the aliveness of the world around me. But after two years on antidepressants, I found something that gave me jolt of feeling strong enough to wake me up for a moment. I then spent the next seven years giving myself daily doses of horror to induce an emotional reaction.

The following are some excerpts from my journal about my inpatient experience. Please know that the people in that hospital often reached out to one another in beautiful ways, but overall felt frustrated and stressed due to an oppressive and sterile environment with little positive reinforcement.