Op-Eds

In response to the widespread tragedy of pathologizing and psychiatrizing people dealing with emotional and mental distress, and in view of the chronic abuse of those in extreme states by our “mental health” system and their powerful allies, I delivered this sermon June 29, 2014 at the Unitarian Church of Vancouver (Canada).

Faced with behavior different from our own or from our expectations, all of us feel that urge to “do something”—an act that is one of the beginnings of prejudice, a malignant virus that all of us have trouble shaking free of. We doctors, especially, want to do something: It’s what we’ve been trained to do.

As a psychiatric survivor who has personally experienced severe psychosis, my criticisms focus on the relative lack of attention to what psychiatric drugs actually are, and on the uncertain, contested nature of the supposed target of these drugs: “schizophrenia.” I will elaborate on each of these points with references, as well as highlighting alternative approaches to helping psychotic people.

Florida’s Wrongful Death Act essentially denies residents and visitors alike the right to live once they enter a hospital. The law has been dubbed “Free Kill” because while it can cost money to correct mistakes, keep hospitals safely staffed and update equipment, it is free to kill.

Psychiatric diagnoses are ballooning in scope and in numbers, many have dramatic and life-changing consequences, reliability levels are poor, co-morbidity levels are high, and the validity of many are doubtful. Despite all this, they have escaped any kind of regulation. It's time for that to change.

We are, more and more, as individuals with “mental health diagnoses,” living in a reality of senselessness, absurdity and and arbitrary outcomes. While I often believe that our movement simply calls itself a movement, but does not really move at all, it is in fact possible today to say that we are part of a post-Justina movement. The attention to her case highlights both the senselessness and the absurdity, but perhaps not the arbitrary nature of how the system functions for those it impacts.

I increasingly think we can only reach greater understanding by working through our own experiences first, and then, if we can, alongside survivors. That will help us become more open to survivor knowledge. For example, we may need to work through our own need for control and understanding. It’s helpful to consider our own reactions to distress or madness — in ourselves and others.

In the early hours of September 19 – about 3 AM, someone estimated – Gloria X. was awoken from her sleep at Trenton Psychiatric Hospital, the New Jersey State hospital. Her new (about 3 weeks) roommate, Florence, whom she had trusted, was on top of her punching her in the eyes. Florence pounded her eyes over and over and over – taking out 50 years of rage on Gloria. Why Gloria? No one knows. Or those who know ain’t talking.

We are an unlikely duo, sharing secrets only known to insiders, the inmates and staff of Bader 5, Boston Children's Hospital's adolescent psychiatric unit. I am the nurse who blew the whistle that no one heard in 2010, she is the teenager who was imprisoned on Bader 5 for nine months in 2013. We met for the first time on this past Thanksgiving Day at Yale New Haven Children's Hospital, where she has been a *medical* patient for the past nine weeks.

I was Marci’s former psychotherapist. When I heard what had happened, I immediately informed the detectives that I suspected that the homicide and suicide attempt were related to psychiatric drugs.

Just as the American Psychiatric Association's (APA) long-delayed DSM5 was about to launch, the director of NIMH, Dr Thomas Insel, provoked a flurry of acrimony when he mentioned in his blog that his organisation intended to move away from the ideas behind DSM: “Patients with mental disorders deserve better... NIMH will be re-orienting its research away from DSM categories... we will be supporting research projects that look across current categories – or sub-divide current categories – to begin to develop a better system”. It now seems Insel's comments had more to do with NIMH funding needs than points of principle.

My story starts in 1976. I had a nervous breakdown whilst studying for my Accountancy Technician examination. I was then prescribed a series of benzodiazepine/anti depressant drugs for 5 years. I have been campaigning for the last 28 years at local, national and international level on this public health scandal and government cover-up. The following questions need to be asked to those responsible: Why have the doctors and psychiatrists ignored the 1988 Committee on Safety of Medicines Guidelines on the prescribing of benzodiazepines? Why are the same physicians making the same mistakes with the newer drugs?

A couple of years ago I had a novel called Stranger Than Kindness published in the UK. It was about  the cumulative trauma that can accompany work in the caring profession; how people can become bruised and reshaped by caring for a living, and what they might do to repair themselves. It was essentially a comic novel about hurt nurses. When promoting the book I found myself talking to two different audiences. The first, were people who like books and come along to events and chat about them. The second were occupied by people with a special interest or expertise in mental health.The questions asked and the conversations that we had were different in those two spaces.

In 2010, my 25-year old son was prescribed Prozac for depression. After a psychiatrist doubled his dose, my son became acutely psychotic and had to be admitted to the hospital. Over the next twelve months, during which time he was treated with antidepressants and neuroleptics, my son had five further psychotic experiences. I thought it might be that my son was having difficulty metabolising the drugs.

When someone is in severe crisis due to feeling emotionally overwhelmed, one of the main access points for care is an inpatient hospital setting.  Though many disparage the hospital setting, there are few alternatives to this setting during an acute mental and emotional crisis. At the same time, there are a number of barriers to individuals getting optimal care. I will try to examine some of these barriers and some of the main critiques of hospitalization. In a perfect world, those experiencing severe emotional crisis would be able to find true sanctuary; a place for rest and healing. With enough time, nourishment and self-care, people experiencing severe emotional distress can and do get better.

For my doctorate research, I talked with 144 people who take or have taken antipsychotics and a third reported overall positive experiences. Another third said quite the opposite, and I can hear them yelling at me to share their side of the story.

One size fits all does not work. It is not possible to use the same tapering schedule for all patients who wish to stop with a certain drug. Therefore we had to come up with a flexible solution that was both practical and allowed doctors and patients to make the choice they deemed appropriate.

I find it surprising that 60 Minutes,” which has a history of serious investigative journalism, would do such a slipshod job on the segment “starring” E. Fuller Torrey. The “60 Minutes” producers made a serious error in relying upon Torrey as its main source. Torrey admits to fabricating “evidence” to further his goal of making it easier to lock up people who have psychiatric diagnoses. Toward this end, he has for years engaged in “an intensive public relations campaign linking mental illness with violence.”

The challenge to promote the rights of persons with psychosocial, intellectual and cognitive disabilities and to transform mental health services across the world is colossal. The QualityRights initiative seeks to provide actors everywhere with the tools that they need to become active agents for change.

Anoiksis (the Dutch association of and for people with a psychotic vulnerability) has introduced a new name for the disease schizophrenia: Psychosis Susceptibility Syndrome (PSS). Together with the old name, its attached prejudices, misleading significance and stigma can be thrown overboard.

I do not claim to know how to heal the wounds from the tragedy that occurred in Newtown on December 14th, 2012. Nor do I claim to know how to prevent future tragedies of this sort. The intent of this post is to oppose ineffective and inhumane practices, prompted by reactions to the events in Newtown and other communities, that are falsely thought to be effective.

As a movement strategy, electroshock must be clearly framed and understood as a blatant human rights violation — a profound and devastating crime against people’s health and lives. Here are three possible action proposals in our continuing struggle to abolish electroshock.

What do we mean when we say someone has a mental illness? If we are to take the phrase literally, we mean that someone’s...

There is hope that the truth about sleeping pills will become more commonplace. As it does, however, we are faced with an even greater challenge: to move beyond the medicalization of insomnia in order to help people sleep better naturally. The alternative paradigm I suggest is that nutrition is a primary cure for insomnia.

I am a mother of a son who was given a diagnosis of schizophrenia in December 2003, a son who is doing well today...