Op-Eds

Thousands of boys and young men are lined up in courthouses around the country to sue J&J for gynecomastia caused by taking Risperdal as young children. The condition is irreversible except by surgical removal. Collectively, they have become known as the Risperdal Boys.

In April of this year, Sera Davidow authored a blog titled “The Downfall of Peer Support: MHA & National Certification.” I do not agree with much of what she says in her blog, and as the vice president of Peer Advocacy, Supports and Services at Mental Health America I'd like to respond.

I find it surprising that 60 Minutes,” which has a history of serious investigative journalism, would do such a slipshod job on the segment “starring” E. Fuller Torrey. The “60 Minutes” producers made a serious error in relying upon Torrey as its main source. Torrey admits to fabricating “evidence” to further his goal of making it easier to lock up people who have psychiatric diagnoses. Toward this end, he has for years engaged in “an intensive public relations campaign linking mental illness with violence.”

Robert Whitaker spoke to a full house at the NAMI Conference in San Antonio last month. For many his message was a hard one to hear. I was among them; a parent, whose son, Max, sat beside me. He’s been on and off antipsychotics for more than ten years to treat the psychosis that comes with his bipolar episodes. Whitaker was telling us that might have been a mistake.

Florida’s Wrongful Death Act essentially denies residents and visitors alike the right to live once they enter a hospital. The law has been dubbed “Free Kill” because while it can cost money to correct mistakes, keep hospitals safely staffed and update equipment, it is free to kill.

Throughout California, the nation, and the world, peer specialists provide services to individuals with mental health challenges. In California, over 6,000 peer specialists are employed. In 2007, the Centers for Medicare & Medicaid Services guided states to create peer certifications. Since then, more than 30 states have created statewide peer certifications, and if Senator Leno’s Senate Bill 614 goes through, so will California

Language, and how we use it, are important to counselling’s conversational work. As a counsellor, my language for understanding and addressing client concerns often fits poorly with the diagnostic and treatment language used to manage services within that system.

In our nation's history, in the face of fear, we have often risen to achieve noble goals. Other times we have behaved tragically — for instance, interning and seizing property from Japanese Americans during World War II. Certainly, there were spies among us then. Only in hindsight did we recognize that our treatment of the larger group — who were not — was gravely mistaken. We are on the verge of witnessing such an event in our own time.

In a recent commentary, University of Toronto historian Edward Shorter laments the efforts of people like myself in states like Texas who have successfully put limits on shocking children in order to induce grand mal convulsions. His argument is that we who have fought against this are denying children a benevolent medical treatment. In order to understand why Shorter’s plea to use electroshock on children is so egregious, we need to know what it does to children’s brains, which means a look at the science.

In the wake of deinstitutionalization, we no longer have the vast asylum system we once did. Instead, something more insidious has taken root — for-profit institutions that call themselves neurorehabilitation centers, group homes, and other official-sounding names.

Lilly’s SSRI fluoxetine (more widely known as Prozac) was approved for canine use by the FDA and repackaged as ‘Reconcile’ for separation anxiety. The pharmaceutical industry has clear motives in targeting the lucrative pet market, with sales of pet meds expected to grow to $10.2 billion by 2018.

A couple of years ago I had a novel called Stranger Than Kindness published in the UK. It was about  the cumulative trauma that can accompany work in the caring profession; how people can become bruised and reshaped by caring for a living, and what they might do to repair themselves. It was essentially a comic novel about hurt nurses. When promoting the book I found myself talking to two different audiences. The first, were people who like books and come along to events and chat about them. The second were occupied by people with a special interest or expertise in mental health.The questions asked and the conversations that we had were different in those two spaces.

It doesn’t have to be like this. Give us back our autonomy. Grant us the legal right to refuse psychiatric coercion based on our own preferences and experiences. It’s urgent. We don’t have another survivor to lose.

We are, more and more, as individuals with “mental health diagnoses,” living in a reality of senselessness, absurdity and and arbitrary outcomes. While I often believe that our movement simply calls itself a movement, but does not really move at all, it is in fact possible today to say that we are part of a post-Justina movement. The attention to her case highlights both the senselessness and the absurdity, but perhaps not the arbitrary nature of how the system functions for those it impacts.

My story starts in 1976. I had a nervous breakdown whilst studying for my Accountancy Technician examination. I was then prescribed a series of benzodiazepine/anti depressant drugs for 5 years. I have been campaigning for the last 28 years at local, national and international level on this public health scandal and government cover-up. The following questions need to be asked to those responsible: Why have the doctors and psychiatrists ignored the 1988 Committee on Safety of Medicines Guidelines on the prescribing of benzodiazepines? Why are the same physicians making the same mistakes with the newer drugs?

One size fits all does not work. It is not possible to use the same tapering schedule for all patients who wish to stop with a certain drug. Therefore we had to come up with a flexible solution that was both practical and allowed doctors and patients to make the choice they deemed appropriate.

For my doctorate research, I talked with 144 people who take or have taken antipsychotics and a third reported overall positive experiences. Another third said quite the opposite, and I can hear them yelling at me to share their side of the story.

When I first heard of the proposed “Helping Families in Mental Health Crisis Act of 2013” (H.R. 3717)”, I felt relieved and thought “maybe somebody has finally got it!” However, as I read and processed the words I realized just how much Tim Murphy didn’t get it. Is this mental health system broke? Yes it is. Can it be fixed? Yes it can. But we must do it collectively and with the experience and voices of those with true lived experiences including their families and allies. I stand with millions of others who have shown through our resiliency that our movement is real, has saved lives and most of all we have people that can give voice to what really needs to be changed within the system. If only people will listen.

The challenge to promote the rights of persons with psychosocial, intellectual and cognitive disabilities and to transform mental health services across the world is colossal. The QualityRights initiative seeks to provide actors everywhere with the tools that they need to become active agents for change.

The US Food and Drug Administration has announced that there will soon be a public meeting to explore providing drug companies with greater flexibility in promoting off-label indications to doctors. When it comes to prescribing medications to children, and particularly psychiatric medications, this is a bad idea. I write both as a former consultant to the pharmaceutical industry, and as a father who lost a son to the toxic effects of antipsychotics prescribed off-label.

Now that biological psychiatry has been discredited, I am championing a pro-suffering cultural shift. It is time to stop pretending that, with the assistance of hoped-for medical "miracles," we can eliminate everything we are afraid of. It is time that we get over ourselves and appreciate that a full existence as humans is fleeting and full of pain, suffering . . . and beauty.

In 2012, I found out that the ten biggest drug companies in the world commit repeated and serious crimes to such a degree that they fulfill the criteria for organised crime under US law. I also found out how huge the consequences of the crimes are. They involve colossal thefts of public monies and they contribute substantially to the fact that our drugs are the third leading cause of death after heart disease and cancer.

In 2010, my 25-year old son was prescribed Prozac for depression. After a psychiatrist doubled his dose, my son became acutely psychotic and had to be admitted to the hospital. Over the next twelve months, during which time he was treated with antidepressants and neuroleptics, my son had five further psychotic experiences. I thought it might be that my son was having difficulty metabolising the drugs.

The most spectacular part of Rep. Murphy’s hypocrisy has nothing to do with abortion or reproductive rights. Allegations of his dangerous behavior and his lack of insight into his own actions would be enough to commit him, involuntarily, to psychiatric treatment under the Helping Families in Mental Health Crisis Act that he championed.

It is no mystery why everyone at the McNair Discovery Learning Center is alive today. Antoinette Tuff was respectful, responsive and kind to a man with a gun. She shared her own difficulties and offered her own humanity. This kind of “Tuff Love” involves real risk, but not more risk. It reaches across vast expanses of human confusion and distress - not to manage, control or subdue - but to attempt connection and offer a lifeline back to humanity. It is the public safety work of the future.